Blueprint Family Support Project  
   
 

CONNECTING

Being a carer for a child with disabilities can leave you with very little time to connect with other parents, become part of a social network and find out about what’s going on in your community.

Blueprint has compiled a list of support and social groups, aimed specifically at supporting parents of children with disabilities.

There are also links to other websites that run forums for parents and have stories by parents that you may find helpful.


Blueprint Families Email Group
Blueprint has set up an email group for family-carers through 'Yahoo!', where you can share information and stories with other family-carers who are members. To join, simply send an email to blueprintfamilies-subscribe@yahoogroups.com.au or phone Blueprint on (02) 4784 2323 for more info.
Counselling support groups
Two new counselling support groups are starting in February 09 at Lifestart Nepean located at 8-10 Carinya Rd, St Mary's.
Limited childcare available.
Contact Deb Emilhain on (02) 96232100.
About Having a Child with a Disability
Parents sharing their experiences of raising a child with a disability
Parent discussion forum
Forum for parents of children with a disability
Family Voices Magazine
Produced by the Association for Children with a Disability
My Time parent support group Katoomba
Katoomba
Contact: Tracey Barrett
Tel: 1800 171 882 (within NSW)
02 9604 5513
Provider: Playgroup NSW Inc
Hosted by: Connect Child and Family Services

The website offers tips and info for parents.
My Time parent support Group Blaxland
My Time, in conjunction with Tresillian, now run a supported play group for parents of young children with a disability or chronic illness. The play group runs every Thursday during school term at St. Andrews Uniting Church in Glenbrook, from 10am-12pm. For more info and to register contact:-
Ann De-Belin 9787 0864
Anne Kulscar 9787 0869
Angela Drummond 4734 2124
or click on the link below to register online
Email group for parents of children with CP
An email group exclusively for parents of children with Cerebral Palsy.
You will need to apply to join by emailing them at the address below, or you can visit the website for more info:
CPecialparents-subscribe@yahoogroups.com.au
The Parent and Carer Resource Centre
At Westmead Hospital, this Centre has been designed by parents for parents. It provides a non-clinical, homely environment where parents and carers can take a break.

The Centre is staffed by a team of fantastic volunteers who are dedicated to providing a friendly atmosphere and a listening ear.

Carer Stories
Following FaHCSIA's release of the Carer Payment Report, this storybook was compiled documenting the experiences of 19 families who have a member with a disability and complex medical conditions. Touching stories accompanied by beautiful photographs.
(2.21Mb)
Tristan and Tiarna's life: A family's journey
A powerful paper presented by Maria Heaton at Every Child Matters, the National Conference on Children and Young People with Disability and their Families in 2008.
Maria Heaton is the mother of three children, two of whom have been diagnosed with Lissencephaly, a severe intellectual and physical disability. She has worked to give them the experiences children of their age would have if they did not have a disability. Maria is a clinical nurse specialist with a Master's in Nursing Education.
Families for Change Journal
Family Advocacy publishes a quarterly Journal Families for Change which focuses on issues of importance to people with developmental disability and their families.

The aim of the journal is to encourage and support families to speak out for and on behalf of their family member, but also advocate for broader change on behalf of people with a disability in general.

Parent stories
The Association for Children with a Disability, Victoria's magazine NoticeBoard includes 'real life' stories from parents and other family members of children with a disability. These stories are a source of great strength and support for families and are a valuable way to educate professionals, students and the general public
Family Care
Talking about your child's disability
Useful informationand guidance on the website of the Raising Children Network
Carer Support Groups